In Sue's Name

 

 

On 8th January 2011 Sue Blasotta tragically died at the age of 42, just six weeks after being diagnosed with a highly aggressive and lethal brain tumour. 

 

 

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She left her two children Sasha and Daniel to face their teenage years without a mother. Sue had friends and family who were diagnosed with different types of cancer, which inspired her to run the Race for Life five times and also to take on the challenge of a sky dive, raising thousands of pounds for cancer research.

 

Three years after Sue's death her father David Taylor, set up a charity In Sue's Name, as a legacy for Sue, but also to raise funds into brain tumours and other brain cancers. David explains:


"I can still remember my complete shock and disbelief when I discovered that brain tumours kill more children and adults under the age of 40 than any other cancer, yet just 1% of the national spend on cancer research has been allocated to this devastating disease. This is unacceptable. While Sue was being treated at the London Royal Free Hospital, two other brain tumour patients from St Monica's church were also being treated, both of whom also later died. Anthony Bourke, who was just 34 when he passed away in 2011, was in the adjacent room to Sue. Jackie McGovern, who lost her fight two years later, was 42, the same age as Sue when she died".

 

Over the past three years David Taylor has worked tirelessly to fundraise. He has roped in famous names, as well as local business leaders, friends, relatives, members of St Monica's Church and anyone who will listen, to help build awareness of the charity. In three years he and his supporters have raised over £40,000, through golf days and other events. Now David has a more ambitious target. 

 

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On 2nd February, In Sue's Name is launching a £1 million campaign at Brain Tumour Research's Centre of Excellence at Queen Mary University of London, where it will be supporting vital research into the most aggressive and lethal form of brain tumour, glioblastoma multiforme.

 

"Galvanized by the fact that treatments for brain tumour patients remain so limited, we are pledging to raise £1 million over the next 10 years to fund vital research. We hope that this will lead to more effective treatments for brain tumour patients and ultimately a cure".

 

At the launch ceremony Sue's children and other St Monicas's families will be putting up six plaques on the Wall of Hope at Queen Mary University, to which represent six days of research into this devastating disease.

 

"It costs £1 million to fund a year of research – that's £2,740 per day. In Sue's Name, aims to help raise enough money to fight this most terrible of diseases so that one day others may be saved from the suffering that Sue and other St Monica parishioners underwent."

 

Sue Farrington Smith MBE, chief executive of Brain Tumour Research says:

 

"We are delighted to welcome our newest member charity, In Sue's Name, into our brain tumour community. This partnership will help us in our mission to help people fight against this devastating disease. Ultimately, it will lead to better outcomes for patients – from improved awareness for earlier diagnosis, to the development of more effective, personalised treatments and targeted drugs. Through the funds generated, we will be able to significantly fast-track progress towards finding a cure for brain tumours. Today, the charity supports one of the UK's largest collaboration of laboratory-based brain tumour scientists, working across a network of four Research Centres of Excellence. Our campaigning at Westminster has driven the formation of a Government Task and Finish Working Group, raising awareness at the highest levels. Brain Tumour Research is campaigning to see the national spend on brain tumour research increased to £30 million - £35 million a year, in line with breast and leukaemia, in order to advance treatments and ultimately find a cure".

www.braintumourresearch.org

 

 

 

www.insuesname.org


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www.totalgiving.co.uk/donate/in-sues-name

 

 

 

 

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